So this is how the day went. This morning, Trevor woke up bright and earlier, ready to go to school for the first time. After getting his backpack ready, we were off. Soon as we walked into the classroom he headed right off to the play area to introduce himself to all of his new friends. No problems fitting right in. Mom here still a bit nervous, so I stayed and helped out in the classroom for a while. He ended up having a blast, but at the end of three hours, he was ready to go home to relax. He talked all day about his new friends and can't wait to go back again on Friday. One more big step taken, making our lives even more normal!
I can't believe that just five months ago Trevor was going in for his third open heart surgery, and now he has started preschool at the elementary school he will be attending next year for Kindergarten. Life is becoming so normal! Yes, we still have to go in for blood draws every few weeks to check on his coumadin levels (blood thinner meds). But on a good note, his last day for coumadin is one month away - yeah! Being on the coumadin really stresses me out with the risks that are involved with falls and head injuries. The Cardiologist will continue to monitor his enlarged liver, as liver complications and other heart issues can develop after the Fontan surgery. (http://www.pted.org/?id=fontan1) As for the extra spleen that is hanging around in his body, nothing to worry about... just an extra body part his doctor said :) He has his ongoing Cardiology appts, even though his next one won't be until February next year. Yep, next year! At his last appointment, his saturation levels are at 96% and there is even a chance that it can get to 100%. Wow, 96% is Awesome! Even better than this, the cardiologist said Trevor does not have any restrictions right now. Nope, NO RESTRICTIONS! So you know what that means... time to sign him up for soccer. He's got a great left foot! And this winter we will have to get him out on the slopes to learn to ski. He will have to learn in time what his heart can handle and when it's too much and time to take a break. He will have to learn to set his own limits. The way the cardiologist put it, Trevor is in the honeymoon period. Honeymoon Period??? Basically the next few years his heart will be great and he will have lots of energy, but as he nears his teen years, then the rhythm issues start and we will start seeing the differences of his half of working heart to kids with a normal heart. He will have a more difficult time keeping up and will tire out easier. And there can be the other possible complications that can develop after the Fontan surgery. Not the best of news. So we can either worry about what his future holds or live in the now enjoying the honeymoon. We are all for the honeymoon period and giving Trevor every opportunity in life to be like other kids. We will just take it one day at a time, starting with preschool!
First Day of Preschool!
Just some other photos we've taken over the last couple of months that I'd like to share.
Hanging out with Grandma & Grandpa at Seaport Village
Oh yea... no more low fat diet, so we had to take him out for a burger!
Homecoming Night for Travis
Shamu & You Family Walk!
My Heart Hero!
Spending the Day at Bates Nut Farm
What a huge day for you, Stacy! (And Trevor!) It's so incredible to watch these kids take off and thrive and experience life. Thank you for sharing!
ReplyDeleteHi I’m Heather! Please email me when you get a chance! I have a question about your blog. HeatherVonsj(at)gmail(dot)com
ReplyDeleteHI! I am a fellow heart Mom to a 7 month old boy with DILV and HRHS. I haven't found many other Moms who have children with this condition - would it be alright if I emailed some questions? My email is lisa(dot)anstey(at)gmail(dot)com if this is ok. Hoping to hear from you. I also have a blog at: www.babyjacobsheart.blogspot.com
ReplyDeleteHere is a great herbal doctor who cured me of Hepatitis B. his name is Dr. Imoloa. I suffered Hepatitis B for 11 years, I was very weak with pains all over my body my stomach was swollen and I could hardly eat. And one day my brother came with a herbal medicine from doctor Imoloa and asked me to drink and I drank hence there was no hope, and behold after 2 week of taking the medicine, I started feeling relief, my swollen stomach started shrinking down and the pains was gone. I became normal after the completion of the medication, I went to the hospital and I was tested negative which means I’m cured. He can also cure the following diseases with his herbal medicine...lupus, hay fever, dry cough, diabetics hepatitis A.B.C, mouth ulcer, mouth cancer, diarrhoea, liver/kidney inflammatory, eye cancer, skin cancer disease, malaria, chronic kidney disease, food poisoning, parkinson disease, bowel cancer, bone cancer, brain tumours, asthma, arthritis, epilepsy, cystic fibrosis, lyme disease, muscle aches, fatigue, alzhemer's disease, acute myeloid leukaemia, acute pancreatitis, chronic inflammatory joint disease, Addison's disease back acne, breast cancer, allergic bronchitis, Celia disease, bulimia, congenital heart disease, cirrhosis, constipation, fungal nail infection, fabromyalgia, (love spell) and many more. he is a great herbalist man. Contact him on email; drimolaherbalmademedicine@gmail.com. You can also reach him on whatssap- +2347081986098.
ReplyDeleteHere is a great herbal doctor who cured me of Hepatitis B. his name is Dr. Imoloa. I suffered Hepatitis B for 11 years, I was very weak with pains all over my body my stomach was swollen and I could hardly eat. And one day my brother came with a herbal medicine from doctor Imoloa and asked me to drink and I drank hence there was no hope, and behold after 2 week of taking the medicine, I started feeling relief, my swollen stomach started shrinking down and the pains was gone. I became normal after the completion of the medication, I went to the hospital and I was tested negative which means I’m cured. He can also cure the following diseases with his herbal medicine...lupus, hay fever, dry cough, diabetics hepatitis A.B.C, mouth ulcer, mouth cancer, diarrhoea, liver/kidney inflammatory, eye cancer, skin cancer disease, malaria, chronic kidney disease, food poisoning, parkinson disease, bowel cancer, bone cancer, brain tumours, asthma, arthritis, epilepsy, cystic fibrosis, lyme disease, muscle aches, fatigue, alzhemer's disease, acute myeloid leukaemia, acute pancreatitis, chronic inflammatory joint disease, Addison's disease back acne, breast cancer, allergic bronchitis, Celia disease, bulimia, congenital heart disease, cirrhosis, constipation, fungal nail infection, fabromyalgia, (love spell) and many more. he is a great herbalist man. Contact him on email; drimolaherbalmademedicine@gmail.com. You can also reach him on whatssap- +2347081986098.
ReplyDeleteAm Richard, I am here to testify about a great herbalist man who cured my wife of breast cancer. His name is Dr Imoloa. My wife went through this pain for 3 years, i almost spent all i had, until i saw some testimonies online on how Dr. Imoloa cure them from their diseases, immediately i contacted him through. then he told me the necessary things to do before he will send the herbal medicine. Wish he did through DHL courier service, And he instructed us on how to apply or drink the medicine for good two weeks. and to greatest surprise before the upper third week my wife was relief from all the pains, Believe me, that was how my wife was cured from breast cancer by this great man. He also have powerful herbal medicine to cure diseases like: Alzheimer's disease, parkinson's disease, vaginal cancer, epilepsy Anxiety Disorders, Autoimmune Disease, Back Pain, Back Sprain, Bipolar Disorder, Brain Tumor, Malignant, Bruxism, Bulimia, Cervical Disc Disease, Cardiovascular Disease, Neoplasms , chronic respiratory disease, mental and behavioral disorder, Cystic Fibrosis, Hypertension, Diabetes, Asthma, Autoimmune inflammatory media arthritis ed. chronic kidney disease, inflammatory joint disease, impotence, alcohol spectrum feta, dysthymic disorder, eczema, tuberculosis, chronic fatigue syndrome, constipation, inflammatory bowel disease, lupus disease, mouth ulcer, mouth cancer, body pain, fever, hepatitis ABC, syphilis, diarrhea, HIV / AIDS, Huntington's disease, back acne, chronic kidney failure, addison's disease, chronic pain, Crohn's pain, cystic fibrosis, fibromyalgia, inflammatory Bowel disease, fungal nail disease, Lyme disease, Celia disease, Lymphoma, Major depression, Malignant melanoma, Mania, Melorheostosis, Meniere's disease, Mucopolysaccharidosis, Multiple sclerosis, Muscular dystrophy, Rheumatoid arthritis. You can reach him Email Via drimolaherbalmademedicine@gmail.com / whatsapp +2347081986098
ReplyDelete